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October 31, 2006

Do these genes make me look crazy?

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From today's Furious Seasons:

Is There a Gene for Skepticism?

Because if there is, I've got it. Which is to say that yet another study is out in which yet another group of researchers claim that they have found yet another gene associated with schizophrenia. I am a big fan of brain research and of chasing down each and every gene associated with each and every mental illness. The trouble is that the media will splash these revelations around the world, as they have with this one, as if someone has just found the Rosetta Stone. I think this breeds false hope in patients and their families.

I've been seeing announcements of this sort for a decade or more. Gene X is the cause of bipolar disorder, Gene Y is directly linked to schizophrenia, and so on. Has anyone seen any of these genes become the pathway to a cure, much less a safe and effective treatment for patients? I haven't.

The sad fact is that scizophrenia treatments haven't advanced much in 50 years. If Gene Y were truly the genetic source of this nasty disease, it would still be 10 to 20 years before it'd lead to a handy capsule one could pop into one's mouth. In the meantime, we do need to find another way to grapple with schizophrenia and other mental illnesses, as our current approaches simply are not working out too well.

So wake me when it's all over.

NOTE: Here's my standard disclaimer: No, I am not bashing researchers and arguing to forestall genetic research. I am a big fan of genetic research. Give the researchers all the money they say they need, and then double the amount. Seriously. But we do need to keep matters in a real-world perspective.

Well-said. My eyes glaze over every time I get an email about another study of this kind. Until I get real proof, I'd have to say these genes don't fit. Heh. It's a laugh a minute over here.

Cute fix: Chihuahua puppy trying to puzzle out lyrics

Gimme a break

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A University of Evansville professor has developed a survey that he says can determine the mental health of the respondent in a scant three minutes. From IndyStar.com:

Shortly after the patient completes the questionnaire, the therapist receives a mental-health profile. This includes alerts on whether the patient is suicidal, depressed, anxious or a danger to others. It also provides information on whether psychotherapy might help the patient grapple with his or her issues.

In addition, the profiles are color-coded, with red connoting a special alert and yellow signifying that the patient is at risk.

Hey, Homeland Security, are you listening?

The good doctor also says, "It is like a blood test. The therapist sees it first and then would sit down with the patient and discuss the implications of it."

Somehow I don't think those who want scientific proof of mental illness will be convinced by such a "blood test."

Gauge mental health in minutes

Imagine there's a future...

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From the Guardian Unlimited:

Imagine there was a new policy, sitting on a shelf somewhere, that could, at surprisingly low cost, and in just a matter of months, transform millions of people's lives. Moreover, imagine that it was scientifically proven, and that it would make people more employable and better parents, thereby increasing productivity, cutting the benefits bill and reducing antisocial behaviour. Oh, and that it would achieve all this simply by making people measurably more stable, hopeful and happy.

The virtues of therapy

October 30, 2006

Just Like You and Me: Josh Campbell

The start of a series highlighting people who talk openly about their struggle with mental illness.

Today's one-dollar question

Why do all the comments posted on my site by Viagra and Levitra, etc., sound like Borat wrote them?

"Is good site, yes, please keep."

Are they being written in Kazakhstan?

Bank shot

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Nigel Morgan sent me this article from the Guardian Unlimited. It's about the way banks over there deal with so-called physical disabilities but don't properly address the subject of bipolar disorder. The thinking is that when you're manic, you're prone to get into real trouble with spending. Then debt collectors get aggressive, which makes things worse. I can certainly attest to that fact. In fact, I defaulted on a student loan and still have bad credit as a result of bad behavior during florid periods of my illness.

But will the bank monitoring a person's spending habits work? What about the right to privacy? Thankfully, it seems that some British banks are taking a progressive approach to dealing with the problem:

The Royal Bank of Scotland group, which sponsors a Mind booklet on money and mental health, says: "If we discover a customer is suffering mental illness and is in financial difficulty, there are processes to help such as dealing with a third party, adopting a softer approach in communications, suspending interest and other fees, not sending marketing material, cancelling credit cards, and accepting lower payments. We would not sell or transfer the debt to another financial organisation."

The illness that banks refuse to recognise

What have I gotten myself into?

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Months and months ago, I got an email from PW's general manager asking if anyone would like to participate in the Dash for Democracy sponsored by Philadelphia's Committee of Seventy. The Dash is 5K, or 3 miles, which for most people would be a breeze. But with my asthma, long history of smoking and constitutional allergy to exercise, I've never been able to run for more than a block without getting winded. The idea of doing three miles was as foreign to me as running the Boston Marathon.

Still, I decided to sign up. The Dash is an opmportunity to highlight the issue that means the most to you politically. People will wear costumes signifying their agenda. I'm going to try to find a nurse's hat to reflect my commitment to healthcare.

I bought running shoes, and I've been training using the Couch-to-5K Running Plan from CoolRunning.com, and the other day, for the first time, I ran three miles. I was so excited, I said "Yes!" and threw my hands into the air. The people at the gym on the other treadmills were somewhat disconcerted. I had to walk for about three minutes in between running, and that's not going to cut it for this race. You have to run a 15-minute mile, which again, I know seems like no big deal, but would be a huge accomplishment for me.

I just realized the race is this weekend, and I'm horrified. I'm not ready! I know I'm going to come in last, and I have to be okay with that. I know I might not finish in time, and I have to be okay with that too. Vince will be on the sidelines with my inhaler just in case.

For a person struggling with chronic illness, this kind of challenge is much more overwhelming than for the normals out there. I've been kind of intermittently depressed these days, but I don't want to increase the Effexor. I guess I just have to be okay with not doing well at the race. That's going to be hard.

My inspiration has come, in large part, from journalist Sarah Watson, ex-PW intern who just finished a triathlon despite some physical challenges that triathletes don't usually grapple with. Read her amazing story at Fat Girl on a Bike. If she can do it, I can too. Mine's only a 5K, after all.

I wonder if I'll sleep at all between now and Saturday.

[This photo (copyright Liz Spikol) is of the kind of footwear I tend to favor. Not exactly the shoe choice of 5K champions.)

Start the day off right

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With a quote (yes, another) from John McManamy's Living Well With Depression and Bipolar Disorder:

"'Whatever works' is my two-word credo, even if that applies to something that gets only 10 percent of us 10 percent better. For one, you could be one of the lucky 10 percent. For another, a 10 percent improvement may be all that it takes to help you turn the corner to full recovery.

"There are two major qualifications to this 10 percent rule. First, it is foolhardy to risk prolonging your suffering and jeopardizing your safety at the outset by rolling the dice on a long-shot treatment. Second, the potential benefits of any treatment need to be carefully weighed against the possible dangers of that same treatment.

"But simple math dictates that you will have several 'ten-percenters' and even 'one-percenters' in your arsenal. You may, for instance, find yourself on four different meds, taking a multivitamin, drinking a daily power smoothie, doing yoga and exercise, seeing a talking therapist, attending a support groups, pursuing a hobby, and attendinig religious services.

"Add to this the 101 informal things that you find yourself doing every day—from a relaxing soak in the tub to listening to Maria Callas to watching SpongeBob SquarePants to hugging your child, and you can see why there is nothing surgically precise about treating a mood disorder."

[Photo copyright Liz Spikol]

October 27, 2006

Hero of the day: Terrie Williams

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Public relations executive Terrie Williams has worked with some of the biggest names in the celebrity world, but she's speaking out now not to push a client's agenda, but to push her own.

Williams was the keynote speaker at American Psychiatric Association's Office of Minority and National Affairs in Chicago, where she emphasized the problems with mental healthcare faced by African-Americans. Williams herself has battled depression, so she knows what she's talking about.

"There's no one on this planet who hasn't been effected with mental depression," Williams said. "I want to make people, in general, to understand that without your mental health you have nothing. We as a people are in pain."

PR guru Terrie Williams focuses on mental health for Blacks

Trapped in the system

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Thanks, Amara, for sending in this story that appeared on Drexel University's website/magazine/bloggity thingie, Dragonfire. To be honest, I wasn't able to finish it because it's very busy at work. It's also very long and poetically rendered, which makes teasing out the facts a little harder and possibly more time-consuming. But like the videos I posted by Andy Lee, it's a reminder of how things can go wrong when they're not going right.

Memoir: Gimme Shelter

[Photo copyright Liz Spikol]

Quote of the day

From John McManamy's Living Well With Depression and Bipolar Disorder:

"Blind faith is your worst enemy. Whether it's the pharmaceutical industry, the psychiatric and talking-therapy professions, or natural-health advocates, all are guilty of overselling their products and services and downplaying their own failings. The negative campaigning that goes on would put a poilitician to shame. Yes, we need to listen to professionals who treat us, but they also need to listen to us. They are the ones with the specialist knowledge, but we are the ones living in our own skins with access to the complete picture."

kvetch kvetch kvetch

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Last night I couldn't sleep. I even felt a little manic. So I took a Benadryl and an extra half an Ativan. The vivid dreams were almost unbearable, though also kind of fascinating. There was a surprise ending to the narrative before I woke up, and it was sort of cool. The thinking and pacing and plot was as complex and suspenseful as The Usual Suspects. Why doesn't this kind of imagination pervade my waking hours? I could be a great scriptwriter.

Anyway, here I am, exhausted and mildly depressed. I don't know where the depression is coming from these days, but whenever I have a public event where I represent PW I get depressed. It just feels overwhelming. Tonight I'm going to be guest bartender at World Cafe LIve (see above) and I worry that I'm not a good enough draw. The insecurities crop up. What if I'm a disappointment?

Additionally, I don't drink at all so I have no idea how to mix drinks. If anyone's coming out to actually get drunk, they'll be very discouraged. They'll have to stay sober enough to tell me how to make the drink. I need a how-to-bartend guide.

Anyhoo, if you're in the area, come on out and I'll give you a Coke. I'm sure I can figure that out.

October 26, 2006

Part II: Misdiagnosed as Mad as a Peanut

A film by Andy Lee. Thanks z0tl!

Part I: Misdiagnosed as Mad as a Peanut

A film by Andy Lee. Thanks z0tl!

Serious inside baseball

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As a public service to those intimately interested in the inner workings of mental health providers, here are the winners of NARSAD's Annual Career Achievement Prizes for Psychiatric Research

The 2006 NARSAD prizes and their recipients are:

* Lieber Prize for Outstanding Achievement in Schizophrenia Research ($50,000): Jeffrey A. Lieberman, M.D., chair of psychiatry at Columbia University College of Physicians & Surgeons, director of the New York State Psychiatric Institute, and psychiatrist-in-chief at NewYork- Presbyterian Hospital/Columbia University Medical Center, has been chosen to receive this prize for bringing new understanding to the development and progression of schizophrenia, and the mechanisms and effectiveness of antipsychotic drugs for treating the disease.


* Falcone Prize for Outstanding Achievement in Affective Disorders Research ($50,000): Lori L. Altshuler, M.D., is chair in mood disorders and professor of psychiatry and behavioral sciences at the University of California, Los Angeles, Semel Institute for Neuroscience & Human Behavior, where she directs the Mood Disorders Research Program and Women's Research Program.

* Ruane Prize for Childhood and Adolescent Psychiatric Research ($50,000): The Ruane Prize is shared this year by David A. Brent, M.D., University of Pittsburgh School of Medicine, and David Shaffer, M.D., Columbia University College of Physicians & Surgeons, for their individual studies of teen suicide.

* Goldman-Rakic Prize for Outstanding Achievement in Cognitive Neuroscience ($40,000): Joaquin M. Fuster, M.D., Ph.D., is professor of psychiatry and biobehavioral science at the University of California, Los Angeles, where he also serves on the medical school faculty and is a member of the Brain Research Institute and the Semel Institute for Neuroscience & Human Behavior. Building on a half-century of seminal research at UCLA on the functions of the brain's frontal lobe, Dr. Fuster is currently investigating the relationships between neural activity and cortical blood flow in working memory.

* The Sidney R. Baer, Jr. Prize ($40,000): Lorna W. Role, Ph.D. (pictured), is a professor of anatomy and cell biology at Columbia University College of Physicians & Surgeons, where for the past 21 years she has conducted promising research into the mechanisms of the central nervous system. Beginning with studies on the physiology and development of neuronal synapses responsive to nicotine, her research has focused on molecular mechanisms and neural pathways underlying motivation, memory and mood, particularly as they relate to schizophrenia.

Is there such thing as a beautiful suicide?

You be the judge.

MY MUM AND DAD'S SUICIDE WAS JUST BEAUTIFUL

MoveOn gets Swift Boated

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I heard a report on NPR today that MoveOn.org is being smeared as anti-Semitic. I cannot believe the craven politics at work here. (And this is after the smear campaign against Human Rights Watch.) I'm so disgusted that I feel i'm slipping into an election-season-based depression. I call it ESAD: Election Season Affective Disorder. Egads.

From Rabbi Arthur Waskow of the Shalom Center:

Dear friends, As you know, The Shalom Center as a 501c3 tax-exempt organization is not permitted to and does not endorse or oppose candidates for office. MoveOn.org is one organization that does. Opponents of MoveOn.org have launched a concerted campaign to smear the grass-roots online movement with false charges of anti-Semitism.

The scurrilous attacks on MoveOn have been based on the brief appearance of anti-Semitic comments written by non-staff people on its open forum. When the staff at MoveOn.org learned about the comments, they acted swiftly to remove the offensive remarks. The Anti-Defamation League praised their response, declaring themselves "satisfied with [MoveOn's] responsiveness" and characterizing the matter as having been "resolved satisfactorily."

Moreover, many of MoveOn's staff are not only Jewish, but Jewishly motivated to repair the world (tikkun olam) through righteous action (tzedekah) and acts of loving-kindness ( gemilut hasadim ). Yet this politicization of anti-Semitism has continued unabated, with charges migrating from The Washington Times to the Wall Street Journal to the Jewish press, repeated ad nauseam on the internet.

No matter what anyone thinks of MoveOn's political views and those of its opponents, it is absolutely unacceptable to charge it with anti-Semitism. False charges of anti-Semitism are not only rechilus – slander – in Jewish law, and reprehensible in any society --– they also risk weakening into meaninglessness any attempt to deal with real anti-Semitism where it does exist. The story of "Crying wolf" is not a Hassidic or Talmudic tale, but it is truth nevertheless.

The Jewish FundS for Justice, a vigorous grass-roots foundation bringing Jewish values and money together to empower the poor and seek justice, has put this petition on-line. We urge you to sign it:

"As American Jews, we condemn the manipulation of fear of anti-Semitism for political gain, including the recent campaign against the online movement MoveOn.org. We stand for the Jewish value of placing hope over fear by expanding opportunity and creating justice for all Americans."

Click here to sign the petition.



So ridiculous

We should just start treating the fetus.

Sending baby to the shrink: Infant psychotherapy gains favor among parents

Thanks, HS.

October 25, 2006

My hometown: Beirut

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Complex magazine, which is dumb, has an interesting article in this month's issue. The subheadline reads: "The City of Brotherly Love is looking more like Beirut every day, with YouTube blasting bloody images from hip-hop street DVDs into homes worldwide. Don't shoot the messenger, yo!"

The article is about the violence and gun culture of Philly hip-hop, represented most publicly by Beanie Sigel. Quote: "Philadelphia is a city tormented by rising crime rates and gun violence, where the intersection of rap and reality is a blood-soaked crossroads."

But there's also the Liberty Bell! And the cheesesteak!

[Photo copyright Liz Spikol. That's me.]

Brain waves, quantitative EEGs, psych meds, er ... other stuff

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Brain Waves Predict Depression Meds

Andrew F. Leuchter, M.D., is a UCLA professor of psychiatry and Vice Chair of the Department of Psychiatry and Biobehavioral Sciences, in the Semel Institute for Neuroscience and Human Behavior at the UCLA. "Odds are the first medicine you choose for a patient is not going to be the one that is going to get them all the way to well," says Dr. Leuchter. "So what we really need is a more intelligent way to choose medications and customize it so that we find the right drug for the right patient."

Using quantitative EEG, a non-invasive computerized measurement of brain wave patterns, researchers discovered that specific changes in brain-wave activity precede clinical changes brought on by medication. "So we can, within 10 or 15 minutes, record enough brain activity that we can get a good assessment of how a patient's doing on a medication, and it's something that is practical enough and can be done in any doctor's office," says Dr. Leuchter.

They record the EEG before the start of treatment and then record a second EEG at the end of the first week of treatment. At this point, doctors can see how that individual's brain is responding to the antidepressant. "If they show the right signal we can say with a pretty good degree of certainty that is the right medication," he says. More than just helping get the right medication, the process can help encourage a patient to stick with their prescribed treatment. Within days, rather than weeks or months, the doctor and patient can feel more secure about the treatment plan. This technique also could slash the time and costs needed to develop and research new antidepressants, according to researchers.

I think this sounds good. I'm pro-brain-waves.

Clearing the air

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Since I've been doing more videos, my blog numbers have gone up and the number of subscribers to my YouTube channel have also increased. I have mixed feelings about this. On the one hand, I'm glad to bring more people to this site because I really do think it has useful information and can be sort of fun, too. It seems like a logical extension of my work as a journalist and columnist who began her career writing about mental health. I feel like it fits together with my goals.

As for the videos, though, I'm still struggling to figure out what I'm doing. The last video I made was very opinionated, but based on years of experience dealing with mental health issues. I felt confident that I wasn't saying anything I didn't believe. The only sentence I regret using is "it's not your choice." Of course it's your choice. That was ill-phrased.

The "funny" videos I made prior to that were enjoyable to make, and built my self-esteem. It's helpful to see yourself through other eyes. But I realized they weren't contributing to the betterment of the world. They were self-indulgent.

As for the ECT videos, the response is mixed. Herb of VNS Depression wrote to me today saying he was very disturbed by my ECT video in which I used the second-person singular to describe what happened to me when I had ECT 10 years ago. I agree that by saying "you" it might've seemed like I was implying that everyone has the same experience. In fact, I was only talking about me, but by saying "you," I was able to avoid the trauma of telling the story again. As a literary device, it's possible to use the second person to indicate the first-person. But YouTube isn't a literary forum, so misunderstandings are possible.

I find that the responses to the videos make me feel more vulnerable, and I have to keep asking myself why I'm doing them. What's the point? How am I helping others? How can I create a mission for the videos that meaningfully incorporates social justice? It's very difficult. I'm using a young medium—an often stupidly employed medium—to try to develop serious dialogue. Is that even realistic? Maybe not.

October 24, 2006

My skepticism returns

Despite my feelings about the New York Times piece we were talking about yesterday, the below article in an Australian newspaper is exactly the kind of thing that makes me suspicious about diagnosing kids with mental illnesses traditionally associated with adults.

Preschool bad habits hint at mental illness

Seroquel for bipolar?

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My fellow mental-health blogger Philip Dawdy has written a great deal over the years about big pharma and the use (and misuse, primarily) of atypical antipsychotics. Now he's written about the fact that Astra Zeneca got approval to market Seroquel as a medication for bipolar disorder, and I've offered a couple comments. I'm torn about the FDA's decision, so I'm trying to puzzle out my own opinions via Furious Seasons, Dawdy's excellent blog. I think we're having a good dialogue over there, and I'd encourage you to join in.

And speaking of bad Seroquel marketing, what's up with this stupid ad? At first I thought the guy on the left was a sailor. But I guess the guy on the right is psyched that he can finally learn to bake a cake and get paid for it. The joys of meds!

Good fences make good neighbors?

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A couple in Brazoria, Ore., wants to turn their house into a recovery residence for people with bipolar disorder. They have three empty bedrooms, and a lot of room in their hearts. Their neighbors—who obviously don't want crazy people in the ’hood—are trying to stop them and the case has gone to court.

Ruling stalls home for bipolar patients

Women: Eat your veggies

But you'll wanna be careful about that bagged spinach.

Vegetables linked to good mental health

October 23, 2006

NOLA Contending

Thanks to Stephen Cornell for sending me this link. The article, from the New Orleans Times-Picayune is the story of a journalist who, after Katrina, sinks into a depression—an illness he'd previously derided. From Chris Rose's piece:

For all of my adult life, when I gave it thought -- which wasn't very often -- I regarded the concepts of depression and anxiety as pretty much a load of hooey.

I never accorded any credibility to the idea that such conditions were medical in nature. Nothing scientific about it. You get sick, get fired, fall in love, get laid, buy a new pair of shoes, join a gym, get religion, seasons change -- whatever; you go with the flow, dust yourself off, get back in the game. I thought anti-depressants were for desperate housewives and fragile poets.

I no longer feel that way. Not since I fell down the rabbit hole myself and enough hands reached down to pull me out.

One of those hands belonged to a psychiatrist holding a prescription for anti-depressants. I took it. And it changed my life.

Maybe saved my life.

This is the story of one journey -- my journey -- to the edge of the post-Katrina abyss, and back again. It is a story with a happy ending -- at least so far.

Hell And Back

Read John McManamy!

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John McManamy has come out with a book that I think is really remarkable. It's called Living Well With Depression and Bipolar Disorder: What Your Doctor Doesn't Tell You ... That You Need to Know, and the promise of that title is amply fulfilled. I'm reading it now, and there's so much great information—from science to economics to holistic healthcare and everything in between. McManamy presents it all without being judgmental or pushing an agenda. His only agenda—and this has been true of him for years—seems to be to help people like you and me. The fact that this book was written by someone who struggles with a mental illness will be an inspiration to everyone who reads it. I highly highly highly recommend it!

Buy it

Haley's problem

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The front page of yesterday's New York Times featured a very sad story of a family grappling with their 10-year-old's mental illness. Initially, when I saw that her diagnosis was bipolar disorder, OCD, generalized panic disorder and Tourette's, I thought that seemed a little ridiculous. My skepticism was consistent with my overall concern that children are being overdiagnosed and overmedicated. And I always wonder: How is it possible to determine what's typical kid behavior and what's constitutes a pathology that we traditionally associate with adults?

But this article is a real eye-opener. Get beyond your initial cynicism, and you see parents who've done everything they possibly could to understand what's happening with their child. it's easy to judge them, they say, or offer solutions. But these people have tried everything, and they grapple with a kind of chaos it's hard to understand when you're not pulled into it day after day. It's a heartbreaking story, and I don't think I'll ever be as quick to dismiss childhood mental illness now that I've read it.

Living with Love, Chaos and Haley

[Photograph by Nicole Bengiveno/New York Times]

Reasonable accommodations?

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Last week we were talking a bit about how to get back into work after a period away. I mentioned "reasonable accommodations," the ADA buzz words that compel your employers to make certain arrangements so that your illness doesn't keep you out of the workforce. Laura writes:

Maybe you could comment on what you think some reasonable accommodations in the workplace for bipolar diagnosed individuals are. Years ago, I brought in a light box to help with SAD aspects and eyebrows raised, but they let me have it at my desk (in a snotty law firm). Eventually, I realized it was making me agitated and hostile, so I quit using it. Nonetheless, year after year, I would deteriorate about this time of year. My psychiatrist and a sleep neurologist both wrote letters to my employer requesting that I be moved from a cubicle to an office with light. They refused. They felt that allowing me to use my lunch hour to attend doctor appointments and to occassionally adjust my coming in/departing time by 30 or 60 minutes were more than enough accommodations. I'm curious as to what other people have asked for and received which helps to work in an office environment.

October 20, 2006

Headache blues

I have a migraine, and thus won't be posting today. Sorry.

Chicago mom responds to Christina Eilman case

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Thanks so much to Jean Mays for sharing her story with us. Jean, I wish you all the best. Keep us posted. You're in our thoughts.

I am a newcomer to this site and am deeply moved by your coverage of Christina Eilman [pictured]. I have been too busy involved in my 22 year old son's care, and a career serving the mentally ill, to update myself on the details of Christina's case.

I was familiar with similar details, however. My then 21-year-old son suffered his first psychotic break during the Summer of 2005, and was arrested. I went to the new Cabrini Green police station and advised the officers of his newly diagnosed bipolar illness, and that I wanted to transport him to Northwestern Memorial Hospital upon his release. I was emphatically urged not to wait, in this sparkling new lobby designed without chairs to discourage family members and friends from waiting. I live about 4 blocks to the north, and I reluctantly went home. Fortunately, my son walked up my sidewalk about a 1/2 hour later and asked to go to the hospital.

I just used your link to share my story with City officials. My story does not have a happy ending, but does not come near the tragedy suffered by Christina's family and by countless others who need critical medical care in a life threatening situation. I implored the City to send more officers to the mental health training. I thanked the female officer who sensitively took the first call from the family. I trust this issue is being thoroughly considered given the lawsuit and media attention. Too bad it usually takes a tragedy to get any machine to respond to the needs of its citizens.

October 19, 2006

Bipolar headline of the day

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Congress Appropriates $1 Million for Electro Energy's Bipolar NiMH Battery Development

Apparently, there's something called a "bipolar wafer cell." Is that like a cookie-phone designed for loony people? Can I communicate with my delusions with it? "This is Liz calling for EVERYONE IS STARING AT ME. Is he home?"

I want one.

Cute fix: Roobarb and Custard!

I have a thing for Bassett Hounds. Once I adopted one from a shelter, but she was compeltely crazy. She and Augie (RIP) didn't get along. He kept wanting to put his head on her long ears. It just didn't work out. I was constantly getting animals for him so he'd be less needy. It never worked.

But aren't these puppies cute? I mean, if you're going to get a dog, you should adopt. But if you're determined to get a Bassett Hound, this video will inspire you.

Giving the middle finger to the death penalty

Death Row Inmate Commits Suicide Hours Before Execution

Thursday's international

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IRELAND: Negative impact of mental illness: 4 out of 10 say mental illness has a negative impact on their lives
AUSTRALIA: Australian farmers commit suicide as hope evaporates: One farmer kills himself every four days.
EU/CANADA: AstraZeneca's looking for approval for one-a-day Seroquel for schizophrenia: They haven't been able to get it in the U.S.
AUSTRALIA: State A-G Lavarch quits to fight her depression: Queensland Attorney-General Linda Lavarch (pictured) has quit her job to battle a "major depressive episode."

It's that time again: The Trouble With Spikol presents ... The Trouble With Spikol

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Here's my column this week, optimized for this website ’cause I put a lot of links in it. It's about my mother, pictured here making food for our break the fast/Yom Kippur family gathering. Notice the posting on her refrigerator.

Nasal Gravity
The ungrateful child gets a wake-up call.
by Liz Spikol


When you’re a kid, so much seems immutable: the smooth curve of the banister, the half-broken slate on the driveway, the way a mariachi puppet makes spooky shadows on the ceiling.

But families move, sidewalks are paved and puppets get trashed. And slowly it dawns on you: Things change. Shit.

I always hated change, so I had to develop adaptive strategies. My father shaved his mustache at the end of the ’70s (a good move for all men other than Burt Reynolds and Reggie Jackson), and I was traumatized. There’d been such reliability in that fuzzy caterpillar above my father’s mouth. Now he looked like an imposter. So I refocused on the immutability of my mother’s nose.

I guess I first noticed her nose when I was being breastfed. True, I couldn’t cogitate, but I was saying to myself, in baby English, “Goo-goo. Ga. Nose. Mommy. Nice nose.”

Her nose is startlingly pretty. It’s charming and adorable, fit for Ashlee Simpson. It’s pert. Teeny. When it comes to both sides of the family, my mother’s nose is a button among half-open penknives. It’s Margaret O’Brien at 6.

I almost had a heart attack when my mom said she was getting a facelift a couple years ago. I told her she was vain, and that I would not be tending her at the bedside. As it happened, that wasn’t much of a threat, as her doctor arranged for post-op care at the Ritz-Carlton.

How could one worry about a procedure that ends at the Ritz? If I ever have my appendix out, I hope they do it at the Four Seasons.

And she only had a partial facelift, which left her nose untouched. Later Botox injections weren’t my cup of tea, but I was content to let her fight nature’s cruel tide—as long as she didn’t screw with the nose.

Then came the news: The nose was a problem. It was dripping and gushing and doing unpleasant things noses shouldn’t do even though they’re clearly designed to do them.

I’d ignored the constant tissue in my mother’s hand for months. My grandmother had recently died, and I thought my mom was working through her grief by adopting one of her mother’s habits. Mah-jongg might’ve been more fun, I thought, but whatever. Grief is personal.

I should’ve known better. My mother didn’t even like her mother.

Something was up there in that perfect nose—something malevolent, maybe even cancerous, and it had to come out. Surgery again, but this time there’d be no hotel—not even a Comfort Inn.

I was consumed by worry and depression. I tried to squelch my anxiety by not getting out of bed, but the nightmares were awful. I went to the shrink after two days of misery, hoping he’d tell me I was depressed for other reasons. Instead he talked about imprinting and maternal centrality.

“Isn’t that a cliche?” I asked. “Does it always go back to the mother?”

“Usually, yes.”

“What a drag.”

There are only a few people who really count in the psyche, he explained, and those people are generally in one’s immediate family. Since my immediate family is especially small, even a small tear in the fabric could compromise the whole garment.

The night before the surgery, my mother called me. “I have to confess something,” she said, and I wondered if she was going to tell me I was adopted. “I nominated you for ABC’s Person of the Week. But not because I’m your mother—though I did write in my email that you’re my person of the week every week.”

Normally, I would’ve mocked her. It was the ultimate Jewish-mother gesture. But I was oddly touched.

When we hung up, I had an epiphany: I wasn’t worried about the nose. I was worried about my mother. Who else would ever love me enough to contact major news networks? Who’d be my cheerleader, fashion adviser and relationship counselor? Who’d understand me? And who’d save me if I went crazy again?

My grandmother’s dead. My father thinks I look like Cindy Crawford but is otherwise quite rational.

A mother’s lunatic worship, I suddenly realized, is a precious commodity. Those who have it think they’re being smothered, and they are. But what a strange thing to complain about: “Goddamn it. I’m overloved.”

This week I went to see my mother postsurgery, and I’m relieved to say she looks pretty much the same. They can do lots of digging in the nose without changing its shape, I guess.

I told her I was glad to see her nose’s perfection was undiminished, and then started complaining about my bowels. She listened and offered suggestions, and then we talked about Farrah Fawcett’s anal cancer. The segues were quite graceful.

When I left, I said I’d let her know when ABC called. I was tempted to get a dig in, but I restrained myself. I’m sure I’ll mock her next week, or maybe even tomorrow, but for the moment I’m glad she’s around and cancer-free.

A nose on any other face wouldn’t seem as sweet. I’m sure of it.

Fast Facts

>> Past ABC persons of the week: Tony Bennett, Billie Jean King, Jann Wenner.

>> First Mother’s Day: 1914.

>> Mother’s Day invented in: Philadelphia.

>> Number of American women who have babies each year: 4 million.

>> Median age of American women when they give birth for the first time: 24.8.

October 18, 2006

Working world

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Oy vey. I'm getting all emotional over a debate on YouTube, a sure sign it's time to leave work for the day. It's just that there's someone who keeps posting things about how brainwashed I am, yet uses Scientology videos to boost such claims. Talk about denial. At any rate, let's forget about all that, shall we? No Scientologists come ’round these parts; they know better.

Someone emailed me today asking how to get back into the workforce after an absence due to mental health problems. People ask me this frequently, and I've failed to address it sufficiently. Allow me to rectify that now with the following response that I gave him:

As for reintegrating into the work world, when I tried to jump in and take on full-time work, I tended to crash because the transition was so overwhelming. I lost several jobs because of that. But when I took part-time jobs and volunteer positions--jobs where set hours weren't required--I did okay, which encouraged me and made me feel like maybe I'd be able to work after all. I was a Spanish teacher back then, and I decided to teach two classes. Then I taught three, then four. And then five was too much, and I had to bail on a couple assignments, which was embarrassing. So then I scaled back.

It was a year or two of kind of trying things on and seeing what I was capable of. Because it was all part-time work, I didn't have to explain myself in terms of the illness. And because I wasn't technically an employee, I could quit without notice. Volunteer opportunities or internships are even better in that regard.

Ultimately, one of my part-time jobs asked me to work extra hours, and I found that I could. Then they asked me to come on full-time, and I felt ready. And here I am, at the same place, seven years later. However, I told them about my illness from the start, and even before the ADA passed, they understood that if I was going to work with them, they'd have to make some accommodations to employ me. (Nonetheless, I was relieved when it became law to do so.) If people value your work and your presence, they will try to do right by you. Being a hard worker who's really interested in the company's goals is a huge help.

There are vocational services as well that I've found useful for people here in Philadelphia. One guy I knew who went through the mental health association's job training did get a job through it, but felt like he was better than the other people there--some of whom were very down and out. I didn't like his attitude. It was very snooty. But it's certainly true that those classes are likely to include people who are still struggling to make life work. If you're a step ahead of that, maybe you're ready to go it alone.

Any other ideas?

[This image is of a woman named Leslie who works at a university in Iowa. I needed an image of someone at a desk, and she has a nice face.]

From MindHacks' Vaughan Bell (who is NOT pictured here)

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This is an important response from someone who's an expert in all things mental-health-y:

I think it's borderline irresponsible to disuade people of the idea that the drugs they take have no effect on the brain and consequently their risk of mental illness.

For example, there is now reliably replicated evidence that certain drugs increase the risk for psychosis. This does not mean this is the only cause, but it is a significant contributory factor. Over the whole population, the effect is relatively small but it the risk varies depending on the drug taken and the individual taking it.

For example, with enough amphetamine or crack, almost everyone will become psychotic. However, cannabis seems to be much more idiosyncratic and recent replicated evidence suggest it interacts with genetic risk so certain people are much more at risk for psychosis when they take cannabis than others without the genetic risk (it seems to depend on a version of a gene known as COMT, it is likely that other genes might have similar interactions which have yet to be found).

Please note, these are not correlational studies. They are studies from which a cause can be determined.

Drug use is your own choice, but it must be done in the knowledge of the risk you are taking.

This includes an increased risk for mental or neurological illness.

I think Vaughan makes some really good points here. I think it's possible that studies from the U.S. and the U.K. have different results. Also, as clarification: I'm not condoning recreational drug use. I think anyone who has a mental illness and uses recreational drugs is just asking for trouble. With fragile brain chemistry, the introduction of any psychotropic element can have serious implications. In particular, I really REALLY am opposed to crack, something Vaughan mentions. I mean, who isn't?

But we need to keep pot use in the U.S. in context. This country is so puritanical and reactionary when it comes to marijuana laws. I get nervous about the idea of anti-drug activists exploiting these studies to fuel their ideology.

[photo by hungaro phantasto]

Speaking of comments...

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Whenever I post a video here, I also post it on YouTube, where I have 133 subscribers who, as far as I know, weren't originally blog readers. It allows me an opportunity to talk about mental health in a forum that's not specifically designed for it (to say the least), and it sometimes gets really interesting conversations going.

I think you guys would be very interested in the dialogue about meds that's going on there now (this image is one of the comments someone left), and I suggest you click on the link below and comment yourself. It'd be nice to have blog readers chime in there.

Click here to see who's saying what.

And remember to click on the option to see ALL comments, which is where the conversation gets more down-and-dirty.

Survey results

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Wow. I've never had so many people respond to a single post. I'm not sure what that says about this blog—or about you guys!—but I'm grateful to y'all for chiming in.

Results: Of 20 people with mental illness, four are habitual pot smokers; 16 are not. Someone suggested that perhaps this sampling isn't representative of the population at large—or at least the population with mental illness—so I'm going to hit up a couple other websites for respondants.

Now, you might wonder why I'm interested in this, especially given that I never ever smoke pot myself. It's just that despite current and past studies, I find it hard to believe that the majority of mentally ill people are habitual pot smokers. I also don't like the implication that smoking pot could be responsible for mental illness; the notion that recreational drugs are the reason people get brain disorders is hopelessly outdated.

I knew a woman who struggled greatly with psychosis, and her father believed her symptoms were a result of doing do many hallucinogens in college. She didn't get help for a long time because of his conviction. When she finally was treated with antipsychotics, her symptoms disappeared.

I just think it's borderline irresponsible to suggest that pot causes the symptoms of, say, bipolar disorder. Do people with bipolar disorder frequently self-medicate? Yes, but I don't think we should conflate the two.

[Photo by thebigdurian]

October 17, 2006

Dos mas

Anon #3: Yes. No.
Anon # 4. Yes. No.

So far, all respondents who have mental illness do NOT smoke pot.

Survey answer, another

Anonymous #2: Mental illness: Yes. Pot smoker: No.

Survey answer

From Anonymous #1: Mental illness: Yes. Pot smoker: No.

Survey: Et tu, Mary Jane?

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Yawn. Yet more research about marijuana and mental illness, this time in a "scathing" report that says 8 out of 10 people with serious mental illness are habitual pot smokers.

This makes me want to do an ENTIRELY CONFIDENTIAL survey of people who read this blog, or friends of those who do. The two-part question:

Do you have a mental illness? Are you a habitual pot smoker?

I'll be the first one to answer: Yes, I do. No, I'm not. In fact, I never smoke pot.

Okay, one down and nine more to go. If you respond by using the comment form, I won't publish it. Or you can email me at lspikol@philadelphiaweekly.com. All replies will be strictly anonymous.

[Image courtesy confusedvision via Flickr.]

A poem I made out of some comments I received today

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Poker

I prefabricate some dead blinds.
I catcall and euthanize.
I go to stud.
Isabelle has a large collection,
which she uses to presurround her hair.
I don't care about Agop.
He is watery, simultaneous, and circular.
I am not going into a trance about it.
Two flossbags are better than one.
But many live ones spoil the tab.
I'm not interested in our vigilant straddle.
Nothing can match the iniquitous, algebraic
super-full of independence.

Oh! Those omnipresent, stagnant, stoic last positions of summer!

Headline of the day

From Ghana's The Heritage:

"MADNESS CONSTITUTES 5% OF MENTAL ILLNESS"

The other 95 percent is composed of neoconservatives.

A woman speaks out about having bipolar disorder

I like this woman's attitude, though what's that in the background? A pentagram? Anyway, sometimes the sound isn't synched up, but listen anyway.

October 16, 2006

Cover girl

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After my advocacy of meds, blog reader z0tl says: "i can see you on the glossy cover of BP soon as well as a spokesperson for lamictal. soonafter, mindfreedom will put a price on your head and some pissed off scientologist will collect on it."

He said he was predicting my future.

In case you're mad at me...

Check out the eternally articulate Philip Dawdy on the subject of atypical antipsychotics like the ones I love so well. Dawdy has been reporting on this stuff with admirable dedication for a loooong time.

Zyprexa, Seroquel And Risperdal Really Do Suck

"Paxilback"

Awesome parody of Justin Timberlake's "Sexy Back." Thanks, Sachin.

Is this video even fit for human consumption?

I'm going for the verite YouTube style. It's not a pretty picture. My eyes seem so unfocused, maybe because of the meds. (Kidding!)

Ah, Texas.

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Illegal group homes for the mentally ill are proliferating in Texas, which means legitimate options are too scant. This report calls the facilities "wildcat group homes," which strikes me as very Southwest. Grr!

October 13, 2006

Too horrifying for words

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After all these years writing about mental health issues, it takes a lot to really get to me. But sometimes I read something and I get so upset, I just have to take a walk around the office to deal with the way it makes me feel.

The case of Timothy Souders (pictured) is one such instance. Souders was a mentally ill man, deeply suicidal, who landed in jail after repeated infractions, instead of in an appropriate healthcare facillity. Sadly typical. But Souders died in jail after being strapped down to a metal table and left there, naked, without meds, as he got progressively more psychotic, for four days. I won't get into all the gory details, but please do read the reportage two stories after the jump. One is about Souders' case in a more general sense; the second is about the surveillance videos of Tim dying on the table.

Thanks to advocate Fran Hazam for alerting me to cases like this one.


JEFF GERRITT: Prison death demands a fix September 1, 2006

Timothy Joe Souders died on Aug. 6, after spending most of his last four days bound naked to a steel bed in four-point restraints, soaked in his own urine. At 21, Souders' life was tragically short and, in many ways, just plain tragic. Mentally ill and unable to get help, Souders ended up alone and dead in a hot, segregated cell at Southern Michigan Correctional Facility in Jackson.

His parents did not know how he died. Steven Souders and Theresa Vaughn of Adrian learned the details two weeks later from my Aug. 20 report in the Free Press. A woman who played bingo at the hall where Timothy Souders worked as a caller brought acopy of the paper to his memorial service that day. Steven Souders, 41, a journeyman machine repair worker, said the Michigan Department of Corrections told him his son died in his sleep.

MDOC denies that, but Timothy Souders' death helped push Gov. Jennifer Granholm to order an overdue independent review of prison health care. His story touched a nerve in Michigan, which has closed most of its mental health facilities during the last few decades. Thousands of the state's mentally ill have ended up on the street or in homeless shelters, jails or prisons.

Geoffrey Fieger's law firm will file a wrongful death lawsuit against MDOC employees and Correctional Medical Services Inc., attorney Paul Broschay told me this week. CMS is the private, Missouri-based company under contract for primary care physicians and other services in Michigan state prisons.

I never met Timothy Souders, but the photos of him that his parents showed me in Adrian last week looked nothing like the bloated mug shot of prisoner No. 580074 that ran on MDOC's Web site. At 5-foot-8, he looked fit, handsome and happy, about 60 pounds lighter than the 235 he weighed in prison, and well-toned from work as a union roofer. Souders had dropped out of high school and moved out of his parents' house when he was 17. Because of his mental disability, he received Social Security benefits.

Before he was arrested in March 2005, Souders worked part time calling bingo games at the Lenawee County fairgrounds. He was popular with the older players, who called him Opie, after the character on "The Andy Griffith Show." Senior citizens and young kids were his heart. In many ways, Souders was a boy inside a man's body.

"When Tim was on his meds, he was a good person, a loving, caring person," said Vaughn, 40.

But Souders had a troubled side. His record showed five misdemeanors, including disorderly conduct, assault and battery and alcohol and marijuana charges. On March 4, 2005, he stole two paintball guns from a Meijer store in Adrian and threatened a police officer with a knife.

"Go ahead, kill me," Souders said before an officer stunned him with a Taser. Souders was charged with resisting arrest and assault. After police took him to jail, Souders stabbed himself in the stomach seven times with a knife he had concealed. Later, he tried to hang himself with a noose made with fabric from jail coveralls. He was charged with malicious destruction of police property.

Souders was screaming for help, but no one was listening. He went to prison on Nov. 1, having received a one- to four-year bit for assault, resisting arrest and destroying police property. It turned into a death sentence.

Prison was no place for Souders, who had a bipolar disorder. He took medications for multiple conditions, including manic depression, psychosis and hypertension. Souders received seven misconduct reports: four for simply being out of place and another three for fighting, assaulting a prisoner and destroying property.

Roughly 24% of Michigan's nearly 50,000 inmates have a history of mental illness, Corrections spokesman Russ Marlan said. MDOC must do a better job of accommodating them, including improving communication between security and health care staff, and between Corrections and the Department of Community Health.

Mental health staff at the Southern Michigan Correctional Facility tried to transfer Souders to Huron Valley Center in Ypsilanti, a psychiatric hospital for prisoners, but a transfer coordinator working for Community Health failed to move him. The state Health Department has reassigned that coordinator and is investigating the incident. Still, someone from Corrections, knowing Souders' condition, should have had enough sense or sympathy to pick up a phone and try to get him out of that segregated cell in Jackson. At one point, the heat index probably reached 106, and medications put Souders at high risk for heat-related injury or death.

MDOC maintains procedures were followed. If that's true, the department needs to take a serious look at those procedures.

"I want to know this is never going to happen to another human being," said Vaughn, Souders' mother.

In the end, the state must be held accountable for this unnecessary death, but Souders should have received help long before he went to prison. Over the last two weeks, Souders' parents have received a barrage of calls from reporters and attorneys. Unfortunately, Timothy Joe Souders had to die before someone paid attention.

Copyright © 2006 Detroit Free Press Inc.

------------------------------------------------------------------------

Video Shows Mentally Ill Prisoner's Slow Death
By Pat Shellenbarger The Grand Rapids Press October 11, 2006

KALAMAZOO -- All Timothy Joe Souders wanted was a shower.

Instead, the 21-year-old mentally ill inmate was locked in a segregation cell and shackled to a steel table. Four days later, on Aug. 6, the Adrian resident was dead, apparently because of extreme heat and dehydration, a doctor appointed by U.S. District Judge Richard Enslen concluded.

As a result, attorneys representing inmates in a lawsuit filed in the 1980s to improve prison medical care are asking Enslen to expand the case to include treatment for mentally ill prisoners.

During a hearing in Enslen's courtroom Wednesday, attorneys in the class-action suit played a video shot by Southern Michigan Correctional Facility guards and a surveillance camera showing Souders as he was led away in shackles to a segregation cell.

Video excerpts from the next four days showed his physical and mental decline, ending as personnel at the Jackson prison administered CPR in an attempt to revive him.

Souders' mother, Theresa Vaughn, sat in the front row and sobbed as she watched a courtroom television showing her son slowly dying.

Dr. Jerry Walden, an Ann Arbor physician called by the inmate's attorneys, testified a combination of the heat, lack of water and medications Souders was taking for bipolar disorder and numerous physical ailments, including high blood pressure and obesity, likely caused his death.

The state Department of Corrections had declared a heat emergency during the period Souders was shackled to the table. On the video, guards entering the cell can be seen wiping sweat from their faces and heard complaining of the heat.

During the four days Souders was shackled, he was not seen by a psychiatrist or other medical doctor.

"Tragically, there was not a psychiatrist on the staff at the time," Walden testified. "I think almost everybody dropped the ball, unfortunately."

Souders was not the only mentally ill inmate to die at Jackson in recent months. Without naming the inmates, Walden listed several others whose mental illnesses contributed to their deaths.

A schizophrenic inmate died Aug. 17 of congestive heart failure and liver failure, testified Dr. Robert Cohen, appointed by Enslen to monitor health care in the Jackson prisons.

Due to his mental illness, the inmate refused medical care, Cohen said. A request for a court order forcing him to undergo treatment was stalled in the Department of Corrections for five weeks.

"Instead, he died for lack of treatment," Cohen testified. "He needed help. Eventually, he died of a treatable illness, a very treatable illness. ...

"I find this chilling."

Most of the hearing, which continues through Friday, focused on Souders, who was serving time for resisting arrest, destroying police property and assault.

For an hour and 15 minutes Wednesday, courtroom spectators watched the video as guards entered the cell, shackled Souders to a table and periodically checked on him. As time passed, he became more agitated, cursed the guards and struggled with them. Repeatedly, he refused water.

Inmate Henry Franklin, who was locked in a nearby cell, testified he kicked on his cell door and hollered for guards to help Souders.

"They told me to shut up and mind my own business and stop kicking on the door," said Franklin, who is blind.

After he talked with attorneys in the case, Franklin said he was called before a disciplinary committee, locked in segregation and his medication for glaucoma and migraines withheld. After he was released from segregation, Franklin found his typewriter