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January 31, 2006

Song of the day: "The Greatest"

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I was never a big fan of Chan Marshall, aka Cat Power. Her voice just seemed too somnolent, too droopy. I haven't heard her latest album in its entirety, but I like the title track a lot, maybe because she's enhanced her dreary sound with orchestral flourishes that make her sound less gummy. The song is beautiful, actually, and quite touching.

The refrain goes:

"Once I wanted to be the greatest
No wind or waterfall could stop me
And then came the rush of the flood
The stars at night turned you to dust"

Well, you know what George Eliot used to say: "It is never too late to be who you might have been."

The Greatest

[Happy photo of Chan Cat by Shawn Mortenson]

NAMI is happy

NAMI Applauds Amnesty International Report

WASHINGTON, Jan. 31 /PRNewswire/ -- Michael Fitzpatrick, executive director of the National Alliance on Mental Illness (NAMI) today issued the following statement:

"Amnesty International's report today on the death penalty and mental illness represents a compelling step forward in making the case that profound injustice exists at the most painful intersection of the mental healthcare and criminal justice systems in America.

"NAMI opposes the death penalty for people with serious mental illnesses. The law has not kept pace with modern science. The criminal justice system is ill-suited to address biologically-based brain disorders that create illogical, confused patterns of thought.

"Juries are called upon to apply narrow, irrelevant legal definitions to people who do not fit those terms. The law tries to paint bright lines between right and wrong in order to evaluate psychosis, delusions, and hallucinations. The death penalty poses issues that typically are never considered:

* Stigma -- fear, ignorance, and prejudice -- surrounding mental illness may influence jury decisions, particularly in states where 'future dangerousness' is a criteria. Mental illness becomes an aggravating, rather than mitigating factor.

* Defendants with serious mental illnesses during trial may appear
impassive, because of the effects of psychiatric medications. Juries wrongly interpret their demeanor as lack of remorse.

* As noted by President Bush's New Freedom Commission on Mental Health, the mental healthcare system in America is a fragmented 'system in shambles.' Barriers to care exist. Individuals with serious mental illness often are unable to get help. Treatment or interventions may be inadequate, including long waiting lists or early discharge from hospitalization.

* In supreme irony, defendants denied medical treatment before committing crimes may be forcibly medicated to make them competent to stand trial or be executed. States make people who are profoundly sick -- through no fault of their own -- marginally well for the sole purpose of putting them to death.
"NAMI thanks Amnesty International for its contribution to this growing debate. We call on state legislatures to eliminate the death penalty in such cases. We believe the U.S. Supreme Court may ultimately rule its application to people with serious mental illness unconstitutional."


For Copy of Amnesty International Report:
go here

In Memorium

It's been a sad few days with the deaths of Wendy Wasserstein and Coretta Scott King (as disparate as their missions were, they were both formidable women).

This came yesterday from Marilyn Baker, NAMI PA, Chester County Coordinator:

"PA Senator Robert 'Bob' Thompson, of Chester County - 19th District, passed away unexpectedly Saturday, Jan 28, 2006 at the U of PA Hospital in Philadelphia. He had been diagnosed with Pulmonary Fibrosis earlier in 2005.

"There will be a Viewing Friday evening (time TBA) and a Memorial Service at 11:00 am on Saturday, Feb. 4, 2006 at the First Presbyterian Church in West Chester Borough.

"I have known Bob for close to 30 years and had the utmost respect for him as a person for his character, dedication to the community, as a public servant to the residents of Chester County and the state of PA, as Chairman of the Senate Appropriations Committee, among other committees.

"In particular, he was a strong advocate on the county, state and national level for those persons with mental illness and for those of them, who were put in jail and prison, due to lack of proper facilities for their care. He will be greatly missed."

Random, but interesting

This is the latest obit I've ever read; the subject of the article died in 2004. But hey, she was a fascinating lady, so why not?

Exploring Mental Illness and Battling Her Own

Headlines: Crime and punishment

Ex-Postal Employee Kills Six, Then Self [via Philadelphia Inquirer]

USA: New report on execution of mentally ill prisoners [Amnesty International]

Program helps defendants get mental health aid [Times Union: New York]

Front page images, stories show tragedy played out close to home [Daily Reflector: North Carolina]

Mental Health Court [NewsTalk 1410 AM: Wisconsin]

Behind the curve

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I've completely reneged on my own promise to provide cute kitten pictures, and I apologize. I'm so behind, the pumas at the Philadelphia Zoo have become the official mascot for Philadelphia Will Do, my colleague's site. I'm sure D-Mac was wondering why I fell down on the kitten job, but I'm going to defend myself by saying: Pumas are not kittens, Dan. Not even close.

Cute report [Philadelphia Will Do]

Photo courtesy Kitten pictures

Brain Frey

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Oy, I'm all Freyed out. Yet the news stories keep on coming. One of Frey's publishers has apologized, and now people are trying to file lawsuits, which just seems unbelievably ridiculous.

I will say this, however: As a person who partly makes her living telling the truth about her own experience, I can certainly understand the temptation to exaggerate sometimes. When it’s a tough day, and you feel like you can’t form a sentence, forming a non-truthful one seems like it would make things easier. The fact that Frey succumbed to this temptation—in a big way—might be looked upon by some with sympathy, especially since the poor guy’s been publically humiliated.

But I don’t have sympathy for him, beyond feeling badly that he has to be pilloried this way. (Might as well put him in the stocks and pelt him with stones.) It’s like Jayson Blair; I’m bipolar too, but that doesn’t mean I’m going to file fake news stories. Being bipolar isn’t an excuse for Blair’s behavior, as he’s suggested.

Likewise, Frey’s being in recovery doesn’t persuade me he’s necessarily a victim. There are lots of people in recovery who don’t lie, who don’t allow the publishing industry to promote a book as truth when it’s a fabrication. There have to be standards, and personal responsibility.

Literary sins, however, get washed away pretty quick—faster, even, than journalistic ones. Frey’s book will remain popular, and despite his saying otherwise, he’ll probably publish another one within a year—something about what it’s like to fall from grace in the world of big-money publishing. Let’s hope someone fact-checks it this time.

The Wright Stuff

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My neighbor gets horrible catalogs all the time. I feel like it must make her feel badly about herself that such tacky companies are so fond of her. She always throws the catalogs out in the communal trash can, and I always pick them out. They’re perfect reading in the morning on the trolley, when I’m just too exhausted to concentrate on the book I’m reading.

My special favorite is Carol Wright Gifts, a catalog filled with fleece-lined eyeglass holders, fitted plastic tablecloths and “Norwegian” slippers. The health-related items don’t conjure a good image: There are compression socks for aching feet and swollen ankles, toe straighteners for hammertoes, magnetic knee braces, a walker tray, an electric callus remover, even “button extenders,” which allows you to keep pants and shirts even after you’ve gotten too fat for them.

Then there are the implications of troubling lifestyle issues: several recliner covers, numerous pet-related cleaning solutions, and enough microwave cooking equipment (including a microwave bacon cooker, pictured here) so that you’ll never need an oven or stove again. Perhaps saddest of all, a one-cup coffeemaker, in case it’s just you and the cat.

Oddly, I feel a strong affinity for the people who order from this catalog, including my late grandmother, who, I now realize, furnished her apartment entirely with Carol Wright products. I don’t have a recliner and a cat, and somehow that seems good to me, like it means I’m okay. But the truth? Most days I’d like to have both, as well as the giant terrycloth towels and the “flattering float dress.” I imagine a Carol Wright universe as happily uncomplicated. A silly fantasy, I know, but my grandmother was so happy to get a bargain on stuff like a patchwork leather luggage set, it was hard not to be jealous.

Professor deception

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Ah, The Chronicle of Higher Education. When I was in graduate school, and fancied myself a PhD candidate, I pored over its pages as if it would reveal the secrets to my qualifying exams and tenure-track positions. When my academic career fizzled due to my illness, I stopped reading it.

Now a PW associate sends this link to a story about a student who ... well, I don't want to give anything away, but whose psychological problems made life difficult for the professor (at a small Southern college; so much the worse for him) who tried to give her advice. It's an interesting spin on the question of student health services.

Not a Counselor

January 30, 2006

Still here

Okay, I'm trying to pretend I'm not blogging right now, but I'm still at work, so it's pointless to pretend. Below, a heartbreaking story of abuse at a state hospital in Texas. Michael Fiala, 35, begged his father to get him out of the hospital, where he was ultimately beaten to death. From the Dallas News:

"Deaths like Mr. Fiala's are rare, said Joe Lovelace, outgoing executive director of the Texas branch of the National Alliance for the Mentally Ill. State statistics support that: Michael Fiala was the only patient to die from assault at a Texas state hospital last year."

I imagine such deaths are, in fact, infrequent, but I wonder at Lovelace's certainty. How do we know for sure?

Amid grief, many questions

Students: Bitter about your school's mental health care?

Here's your chance to be counted. I don't know the content of the survey, but it's important that students be heard on this subject.

NATIONAL EDUCATION STUDY FOR STUDENTS WITH MENTAL ILLNESSES

An increasing number of students diagnosed with mental illnesses are attending postsecondary institutions such as 4- or 2-year colleges, vocational schools, and graduate schools. However, little research has been done to assess how such diagnoses impact these individuals’ academic and campus experiences.

We are conducting a study of the postsecondary education experiences of students diagnosed with mental illnesses. We are looking for both past and current students who are willing to participate in a brief and anonymous online survey. This survey will provide valuable information about how a student’s mental illness affects their college life. We would be excited to have you participate in our research study if you:

➢ ARE CURRENTLY ENROLLED IN A POSTSECONDARY INSTITUTION, OR HAVE BEEN IN THE PAST

➢ HAVE COMPLETED AT LEAST ONE SEMESTER

➢ HAVE BEEN DIAGNOSED WITH A MENTAL ILLNESS

➢ ARE AT LEAST 18 YEARS OLD OR OLDER

To show our thanks for your help, participants will be eligible to enter a raffle that will take place at the conclusion of the study. Complete the survey for your chance to win one of:
Two $150 prizes
Two $100 prizes
Ten $ 50 prizes

TO PARTICIPATE, PLEASE VISIT THE FOLLOWING WEBSITE:
WWW.UPENNRRTC.ORG

*Please email us at the following address for more information: edsurvey@upennrrtc.org

P.A. alert

Activists, get those dialing fingers ready:

Medicaid advocates have one last shot to defeat federal budget Reconciliation Cuts Made in December. Only 6 votes in the US House have to switch to stop the devastation. Make one your representative!

CALLS….FAXES….e Mails NOW TIL FEBRUARY 1
to Washington Offices of these Reps

Charles Dent (PA) Phone 202-225-6411 Local Phone 610-861-9734 Fax 202-226-0778

Mike Fitzpatrick (PA) Phone 202-225-4276 Local Phone 215-348-7658 Fax 215-348-7511

Jim Gerlach (PA) Phone 202-225-4315 Local Phone 610-594-1415 Fax 610-594-1419

Timothy Murphy (PA) Phone 202-225-2301 Local Phone 412-344-5583 Fax 412-429-5092
[Co-chair of House Mental Health Caucus]

Todd Platts (PA) Phone 202-225-5836 Local Phone 717-249-0190 Fax 202-226-1000

Curt Weldon (PA) Phone 202-225-2011 Local Phone 610-259-0700 Fax 215-596-4665

Your Message to Congress is :

Vote NO on Budget Reconciliation February 1.


Vote to preserve healthcare our neighbors need. Medicaid matters to our community!


Song of the day: "I'm Not in Love"

tencc09.jpg
Why do I find this dumb song, "I'm Not in Love," by 10cc so pleasing? It's classic ’70s soft rock, the kind of songs no one makes anymore because they're too painfully sweet. Think: the Carpenters, America, that sort of thing. At a PW-sponsored lit reading once a few year ago, writer Gabe Boylan talked about his love for soft rock, and it warmed my heart. I don't think there are many people who feel so deeply about such superficial songs.

This song is so bad, it's almost New Age, but that's partly what makes it so good. I actually believe that 10cc were pretty brilliant—that one album How Dare You! is funny and solid good pop.

I'm Not in Love

10cc fan club

Headline of the day

From the "breaking news" section of Genetic Engineering News' website:

People Can Suffer from Bipolar Disorder for Years until It is Correctly Diagnosed

Stop the presses! Er, browser pages!

Blandamerica

Kathy.jpg by lynnell stephani long.jpg
I went to see Transamerica with Felicity Huffman this weekend. (We had a great time; I think we're going to see each other again. Heh.) I've heard nothing but raves, basically, about Huffman's performance, and about the film's intentions, which I agree are noble.

But I gotta say, I thought the film was pretty bad. Gender dysphoria is a serious condition, and those who suffer from it do certainly struggle with some of the things Huffman's character endures. But the movie was so deeply conventional and formulaic, and so uninventively filmed and conceived, it was hard to believe the subject matter was in the least controversial.

The conventional aspects are both entirely expected and wholly unrealistic. The way that Huffman gets set up with her young street-hustler son, a blank slate whose pearls of wisdom include explaining how Lord of the Rings is gay, makes little sense. From that point on, it's a road-movie paint-by-numbers, including appearances put in by our favorite types: the noble Native American and the warm black lady. The hillbilly stepfather is a stupid personification of the trauma of physical and sexual abuse. And the dysfunctional family in Phoenix is over-the-top with drama and hysteria, which is a shame because it offers the character actor Burt Young nothing to do except shrug his shoulders. There are a couple moments of ridiculous Jewish/Yiddish invocation from a blond pixie who probably spent her education saying the catechism, and there's the obligatory dog-acting-funny/cute shot that everyone has to react to.

If it weren't for the fact that Huffman plays a transgendered woman, and her kid's sexuality is ambiguous, the movie would be by-the-books after-school-special material.

I read that director Duncan Tucker was inspired to make the film after learning that his Hollywood roommate, actress Katherine Connella (pictured here), was born as a boy. He was fascinated—but not enough so to cast her (or someone like her) in the film, apparently. Instead, we have a woman playing the part, and what's subversive about that? If you really want to take risks and show people the reality of the transgendered experience, have the balls to cast a transgendered person in the role. Instead, we have to endure articles in the press about how Huffman transformed herself into a man and bugged hubbie William H. Macy by talking like her character all the time. Ooh, so Method.

Surely one of the reasons she got a Golden Globe is because there's a scene in which she drools. "Look how brave she is," say film fans. "She's not afraid to drool on camera!" It's the Charlize-Theron-in-Monster syndrome all over again.

Obviously, the film has a positive message, though it's hard to take it seriously. The one scene that could have been meaningful—a social gathering of transgendered folk—turns into a weird hoedown, which I didn't get. Why the singing and music when we could have had substantive dialogue? Oh well.

I'd love to hear what transgendered people think of this movie. I looked on a few message boards, and saw mixed reviews. But maybe I'm not understanding how powerful it is to get this message out there, to normalize the experience and expose people to the struggle.

Am I being too critical?

[Photo of Katherine Connella taken by Lynnell Stephani Long]

Weekend comments

This weekend, when I was supposed to be taking time off from blogging, I simply couldn't help reading some of the comments people left. They're so interesting, and offer lots of great reading tips.

So I'm going to encourage you to check them out:

About vivid dreams
Medicare Part D gets a D from a subscriber
Racism and Kendra's Law

"Effing the ineffable"? I don't even know what that means

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Got an email today about a mental health article titled "We are happy conservatives here to brainwash you into doing bad things for your body." Oh, wait. It wasn't called that. It was called "Abortion causes massive mental health problems for women."

I can't speak to the quality of the research cited, which I'm going to look into later today, but I'm disturbed by the presentation and contextualization of the data, on a website that's admittedly a conservative hub. I get along with everyone—right-wingers, lefties, ambidextrous people—but this site is a little too strident for me, and I feel like it's representative of how the anti-abortion movement is being waged—cannily, and persuasively—so it's worth taking a look.

One of the advertisers on the website it the conservative T-shirt maker thoseshirts.com, who say they've been "effing the ineffable since 1991." Good for them! I think.

Pictured here: a new take on the radical Che Guavara shirt that those damn kids are always sporting. With the cutie boy shirts (isn't that desecration of the flag?), it's a fashion do. I only wish Ann Coulter were the model.

More mental health activism in Uganda

Care for people with mental illness [New Vision]

January 29, 2006

Ear this!

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I want to keep you all abreast of the latest developments in the world of mental health, so I scour the newspapers and websites for important stories that'll make you think.

Yesterday evening, tired after a long day of doing nothing except being depressed, I surfaced and checked out the New York Times' Science section, and found the below story. For some reason, I'm mesmerized, maybe because my hearing is kind of bad. (And no, I don't have ear wax. Not that there's anything wrong with that.)

Does this mean the end to ear candling? Seems a shame, given this image from Wally's Natural. How will that little Amish girl bond with her mother?

Japanese Scientists Discover Ear Wax Gene

January 27, 2006

Sometime I get a press release that I think is sent to me because I'm a mental health expert...

mia_farrow_350.jpeg
...but it's not.

TO: Liz Spikol
FROM: PR person
Subj.: RE: "Crazy Cakes"

The love of a Mother is unmistakable and powerful, and the moment Rose Lewis set eyes upon her daughter in a Chinese orphanage, she was smitten. I LOVE YOU LIKE CRAZY CAKES ... AND MORE STORIES ABOUT FAMILIES, the newest release in the acclaimed Scholastic Video, tells the true story of the author’s arduous trip to China to adopt a baby girl. Appropriately, Oscar®-winning actress and adoptive parent Mia Farrow narrates this heart-tugging story of a mother's love and a baby's smile as they become each other's family...

Racism in U.K. mental health care

From Black Information Link:

African-Caribbeans are:

· 44% more likely to be sectioned.
· Twice as likely to be referred to mental health services through forensic services
· Detention rates for African-Caribbean’s are 25% -28% higher that that of white British groups.
· They are 70% less likely to be referred by their GP for counselling and other non-institutional help to recover.
· Referral rates by police are almost double that of white British groups.
· The use of control and restraint is 29% higher for Black inpatients.
· Seclusion rates are 50% higher.

Press Release: Black Leaders Launch Attack on Mental Health Bill

Windy city confusion

Is Keon Lipscomb mentally ill and suffering from a history of abuse? If so, does that mean he was legally insane when he sexually molested then killed his girlfriend's toddler daughter, Unique?

It'll be interesting to see how this case plays out. Prosecutors want the death penalty. Looks like the defense would be satisfied with life in prison. It's another example of the tricky (and inadequate) distinctions the law provides to grapple with the behavior of a mentally ill offender.


Prosecution continues to attack killer's character [MSNBC]
Slain Girl Brought Joy, Mom Testifies [Chicago Tribune]
Killer Has Mental Illness, Doctor Says At Hearing [Chicago Tribune]

Medisucks Part D update (BBI)

hannah on carpet
"First, the voices return. Next, it's the suicidal thoughts. Without the prescription medication that controls their mental illness, they turn to self-medication using drugs or alcohol."

It sounds kind of overly dramatic, but Jo Ciavaglia's article for the Bucks County Courier Times, a publication often mocked by my colleague D-Mac, is well reported and a micro reflection of what's happening across the country:

"These people are having enough trouble getting through the day, let alone getting their medications," said Anita D'Antonio, a Warminister Hospital spokeswoman. "It's very disturbing."

The quandry raises the question: Who do we care about less: the elderly or the mentally ill?

Mentally Ill Are Also Suffering Under Medicare Confusion

’Nova and locks

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College kids!: Careful about vomiting in the toilet after a bender—especially if you're on antidepressants!

Villanova University (which serves as hosts to, uh, a few benders each year) has just received more than $100,000 from the EPA to "identify ways to better manage how prescription and non-prescription pharmaceuticals are discarded from university dormitories." What are those kids doing? Dumping bottles of Prozac into some pond or something? (I just asked an alum if there was a pond on campus, or a body of water. "Beer," he said. "That's the biggest body of water there." Hey, he said it, not me.)

Anyway, here's the link to further information, though the press release itself is elusive (unlike most press releases, which are profligate, and pollute the land more than any Valium tablet possibly could): Mid-Atlantic P2 grants

Night of the living dread

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Yesterday was a brutal day. Sometimes I wake up in the morning, after the nightmares, and I feel infected by the dreams, as though I'm covered in sores. Infection is the only metaphor that seems to express the way the dreams linger on my skin for the entire day after I've had them. I can't shake the fear and nervousness, or the horror at some of the images.

Two nights ago in the dream there was a mentally ill man who'd been chased by a lynch mob and then locked in a furniture store. He was wearing dirty clothes, and a crumpled green knit hat. He was peering out of the display window, his hands flat agains the glass, his face frozen in terror. The more he wanted to get out, the more the masses wanted to pile furniture against the door to keep him locked in. I was trying to convince them otherwise: "He's sick. He needs help. He's not dangerous to you. We'll get him help." But no one listened. It was like I was in Night of the Living Dead saying, "He's a flesh-eating zombie, it's true, but let's be nice."

For the entire day, his face haunted me. That sadness and fear seemed to permeate the fabric of my shirt and jeans. It made me shaky and depressed, and I found doing any work was impossible. I've been told these vivid dreams may be a side effect of one of the meds I'm taking, and I have to look into that. I'm wary of going in that direction since my meds work so well, but I can't possibly go on like this.

January 26, 2006

Sad, sad, sad

I always feel deeply for people who commit crimes because I have this misguided notion that everyone means well, and if they've done wrong, there's probably a good reason, whether individual or societal. I'd be an incredible defense attorney.

Two stories in particular kind of have me feeling heartbroken. One is about Troy Rigby, who jumped off a plane in Florida the other day because he was feeling claustrophobic. Another is about a woman in Guam who killed her neighbor's son, sort of by comforting him to death. The Guam story isn't getting much play—um, maybe because it happened in Guam—but the Florida story has been covered extensively. Below, some links to Rigby's story:

Man who bit fellow passenger has history of mental illness
Fl. Plane Jumper's Family Confirms Mental Illness
Family: Bipolar illness led man to leap from jetliner at Fort Lauderdale-Hollywood airport
Sister Says Man That Jumped Off Plane Was Bipolar

Now that's what you call expert testimony

From the St. Paul Pioneer Press:

"The Minnesota chapter of the National Alliance on Mental Illness will host David Kaczynski, brother of "Unabomber" Ted Kaczynski, for a talk Tuesday on mental illness and criminal justice. The free forum, which runs from 6:30 to 8:30 p.m., will be held in the John B. Davis Lecture Hall at Macalester College. A panel discussion will follow."

Headlines: national

Drug Company Settlement To Help Mental Illness Group [KTHV Little Rock]
Man who killed twin daughters moved to mental health facility [WSOCTV Charlotte]
Tourette’s Symptoms Provoked by Lamotrigine in a Bipolar Patient [American Journal of Psychiatry]
Public welfare executive rebounded from mental illness [The Derrick]
Mental Health Care of Deaf People: A Culturally Affirmative Approach [book review, Psychiatric Services]
Palm City man gets life in prison for killing mom with crossbow [Gainseville.com]

Hungry for links

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I'm trying to compile a definitively comprehensive list of mental-health (and related) websites. There are a lot here already, and some of you have been helpful in telling me about others. But I want more.

My colleague just told me about Temple University's Disabilities Studies blog. I know people with mental illnesses don't always think of themselves as disabled, but there is some crossover—both academically and practically.

More links, please!

[Photo of sweet calabrese sausage—mmmm—from Di Bruno Bros.]

Most popular ways to kill yourself

This release comes courtesy of Scientologists in Oklahoma, who are obviously using it to promote their anti-psychiatry message, which is stupid and destructive.

But this report from DAWN is somewhat interesting. Just don't think of it as a how-to.

Opiates, Antidepressants Top List of Substances in Drug-Related Suicides

The Substance Abuse and Mental Health Services Administration's Drug Abuse Warning Network (DAWN) found that the most common single-drug suicide deaths involved opiates, followed by antidepressants and then cocaine, sedatives and anti-anxiety medications.

DAWN information showed that 7 out of 10 of the suicide deaths involved multiple drugs. The highest rates included combinations of alcohol and antidepressants, anti-anxiety medications and opiates, alcohol and opiates, and then antidepressants with opiates. One quarter of the overall deaths in the metropolitan areas and states involved multiple antidepressants.


The DAWN study of 32 metropolitan areas and six states also looked for
mortality rates for drug abuse. Of the cities that were examined, Baltimore and Albuquerque had the highest rates with more than 200 deaths per million people. Another 14 metropolitan areas had drug misuse death rates that exceeded 100 per 1,000,000.

In the six states, the number of deaths related to drug misuse or abuse ranged from 74 to 697. After adjusting for population differences, the rates of drug misuse/abuse deaths ranged from 88 deaths per 1,000,000 in Maine and New Hampshire to 162 deaths per million in New Mexico.

The Drug Abuse Warning Network is a public health surveillance system that monitors drug-related hospital emergency department visits and drug-related deaths to track the impact of drug use, misuse, and abuse in the U.S.


Song of the day: "It Was Supposed to Be So Easy"

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When I'm feeling frustrated by silly details, as I am today, I like to listen to The Streets, Birmingham, England's pied piper of cockney banality (aka Mike Skinner). On 2004's A Grand Don't Come for Free, the rapper's songs are filled with irritation about things that are essentially meaningless—not being able to get a cell phone connection, or going to the ATM only to discover he has insufficient funds. The songs chronicle things like an annoying fight with his girlfriend; she's mad because he wasn't there to nurse her through a hangover—vomit got in her hair, and she almost toppled down the stairs—or his hanging out in a pub with buddies, rating girls on a 1-10 scale determined, in large part, by how many beers they've consumed.

The refrain from "It Was Supposed to Be So Easy," which nicely characterizes my day:

"Today I've achieved absolutely nowt
In just being out of the house, I've lost out
If I wanted to end up with more now
I should've just stayed in bed, like I know how"

Morning, rosebud

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I'm having some technical problems today. This domain name has changed. It's now www.trouble.philadelphiaweekly.com. The change, I'm told, will allow a more refined assessment of who's reading this, if anyone. That means the number will be lower than it initially was in the unrefined assessment, which I was quite happy with. But I guess it's better to live in reality.

While we're adjusting things here, don't despair. Doesn't this photo give you hope? Or at least a little twinge of "it's so cute it's painful"? It gives me cramps.

Photo courtesy Fazen via Flickr.

January 25, 2006

Song of the day: "Rhode Island Is Famous for You"

I love Blossom Dearie, with her little-girl voice and jazz savvy. This song is from her Broadway album, and it's one of my favorites. The lyrics are kind of corny, I know, but she makes it classic-Verve cool.

"Rhode Island Is Famous for You"

This is not a flattering photo, FYI

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Many readers of this blog have written to ask about my mental health history. But after writing about it in print for almost seven years, I find myself too tired—or drugged?—to repeat it all again.

Thus, I present to you, THE EXPLANATORY COLUMN (I don't know why I put that in all caps), which should answer many of your questions. It was the first column I ever wrote for Philadelphia Weekly, in 1999. Forgive the out-of-date references: Both my cats are dead now, for instance. But it should give you the basic idea. Here it is:

Lost and Found

For the past two weeks, a Mexican heavy metal band was living in my bathroom fan. Okay, I know what you’re thinking: They weren’t living there, they were probably just using it as a cool place to jam. Either way, today’s the day the music died, and my bathroom is once again free of guitar feedback and Kiss-style Spanish. But the bathroom fan still speaks to me, its prosaic hum telling me what I need to hear: The drugs are finally working.

Before you launch a volley of “Just Say No!” buttons, hear me out. While I am a drug addict, I have an excellent excuse: The drugs I take—stimulant, mood-stabilizer, anticonvulsant and the ever-important antipsychotic—are not only legal, they are eagerly thrust upon me by my psychiatrist, who represents the interests of friends, relatives and society at large—i.e., you.

And though my drugs are definitely “mind-altering,” I thank God every day that my mind is altered, thus allowing me to distinguish between my life and the Pope’s.

But before I discovered the right “medication cocktail,” as the doctors so blithely call it, I lost seven years of my life. Most people can’t imagine losing that much time; we get just a glimpse when some guy who’s been in a coma since 1990 unexpectedly awakens and, blinking from the flashbulbs, asks, “What’s happening with the Gulf War?”

My plundered memory—not knowing who I voted for, no narrative of my past—is troubling. But my lost sense of myself—who I was, what I would be—is worse. I returned from my war to a bombed-out self, the structure too damaged to rebuild, so who I am will have to be built from scratch. It’s an opportunity I’m lucky to have: There were times when no one knew if I would survive. But Spikol is back in the game.

My mental illness, which I’ll just call “being two cents short of a nickel,” was diagnosed in 1991, when, as a graduate student, I was first admitted to a psychiatric hospital. Pursuing a Ph.D. in comparative literature—a field best exemplified by sentences like, “The meta-subtext of the Other is part Marxist-metaphysic, part post-colonial-pastiche”—could make anyone feel removed from reality. But I don’t think the other students spent their downtime breaking dishware and mirrors because of a delusion that glass was an active, murderous substance.

In between such “episodes,” I tirelessly pursued my lifelong dream: Tenured professorship at 28; marriage to a sexy renegade scholar; a Victorian fixer-upper in Swarthmore soon to be filled with the pitter-patter of precocious feet.

Having grown up in downtown Philadelphia with privilege-plus, the product of happily married parents and private schooling, I had no reason to think my modest goal of academic bohemianism was unrealistic.

But, as they say, fortune is a woman and a woman is a sometime thing—especially if that woman is me. My chemicals just wouldn’t cooperate.

The last episode started, as all terrible things do, discreetly: a little paranoia here, a little obsessive-compulsion there and enough dissociation to render hours, even years, meaningless. I think I called my mom the day after I sat, head in oven, waiting for Sylvia Plath to take me away.

My mother’s tenacity, which saved my life, was borne of a creeping awareness that, despite all the pills and potions, her baby still couldn’t tell a hawk from a handsaw, let alone finish an advanced degree.

Now, I am finally stabilized, after endless visits to the best in the crazy-cure biz, hundreds of medication combinations, too many lost weekends in the loony bin and—as the coup de grace for the truly treatment-resistant—shock treatments.

But seven years of this shit has taken its toll.

I’ve had to relearn the world, from tooth-brushing to small-talk no-no’s. (“What do I do? Uh, I think I bought milk today...”) When asked what it’s like to lose so much time, I can only compare it to falling asleep in a bread line in the former Soviet Union and waking up in a SuperFresh, surrounded by a bounty of unfamiliar free-market exotica.

Everything is news to me, and any historically based assumptions about my tastes, knowledge or parallel parking ability are not to be relied upon.

Physical evidence, like the plethora of 19th-century novels in my apartment, proves nothing. I can’t get through the first page of a novel now, let alone the siege that is Brothers Karamazov. Photos of me and my husband, from whom I’m now separated, tell the tale of a once-happy couple; sadly, I have almost no memory of our married life together.

At 30, most of my peers are trying to “find themselves,” to determine who they are fundamentally, not just what feels good right now. It would be so much easier to “find myself” if I hadn’t gotten so completely lost.

Like Rip Van Winkle awakening in a crappy loft apartment with two cats and a stellar jazz collection, I know one thing—and only one—for sure: Since there’s no going back, I have to move forward. I’m not sure where I’ll wind up, but keep your seat belts fastened. It should be one hell of a ride.

In Memorium

RIP Benjamin Ricci

Benjamin Ricci: Credited with mental health reform [Boston Globe]
WMass crusader for retarded dies [Springfield Republican]
Benjamin Ricci's book, Crimes Against Humanity

Better than Sylvester Stallone. And I say that as a Philadelphian.

Last month Patrick McGean, a homeless man in Utah, threatened to kill Salt Lake's mayor, Rocky Anderson, and was arrested. This was after months of McGean's openly stating his dislike for the mayor, and threatening to harm him.

Anderson was positively sympathetic: "There was an obvious mental health issue," Anderson said. "My heart goes out to him. Untreated mental illness is one of the great tragedies in our society. I hope that he's able to get good treatment."

Wow.

McGean undergoes mental health testing [Salt Lake Tribune]
McGean arrested [Salt Lake Tribune]

Advice for Gena

A few days ago we heard from Gena, who's just graduated from school and is now looking for work. The question of how to handle her illness and disclosure with potential employers has her worried.

Today, a reader writes with some well-considered advice for Gena.

Check it out here: Read this, Gena!

Sleeping with The Idiot

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I have meeting after meeting today, which is why I've filled my bladder to capacity with Constant Comment tea. It's a two-fold purpose: I have an excuse to dash out of the meetings intermittently—because one can't wear Depends all the time; and I have enough caffeine in me to keep me awake.

Wakefulness is to be much desired right now, as last night I dreamt I was having an affair with Angelina Jolie. She kept saying to me, "Do you like my lips?" and I was thinking, "I don't know. They're so puffy!" She was very sweet to me, but I knew she wouldn't stay. I mean, I'm cute and all, but I'm no Brad PItt.

From Dostoevsky's The Idiot:

"Why, also, on awakening from you dream and entering full into reality, do you feel almost every time, and occasionally with an extraordinary force of impression, that along with the dream you are leaving behind something you have failed to fathom? You smile at the absurdity of the dream and feel at the same time that the tissue of those absurdities contains some thought, but a thought that is real, something that belongs to your true life, something that exists and has always existed in your heart; it is as if the dream has told you something new, prophetic, awaited; your impression is strong, it is joyful or tormenting, but what it is and what has been told you—all that you can neither comprehend nor recall."

January 24, 2006

Song of the day: "Rain"

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"In the midst of all the drama, you take a little time to kneel
To deal you take a pill, just to deal with the drama
You thinking your life sinking, and there isn't a plumber
They tell you what doesn't kill you, only makes you stronger
You'd have to be a Superman, to lift as much as me, partna..."
—Scarface + Chamillionaire, from The Sound of Revenge

Bipolar technology: Part the Second

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The Chemical Fingerprints of Mental Illness: Part 2. [Technology Review]

[Side note: I'm sorry for the big blurry brain. Let's hope the MRI technology is more acute than my ability to resize images.]

Crumbs update

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As you may recall, I wrote an alert recently about a TV series called Crumbs, which perpetuates some seriously offensive notions about mental illness.

NAMI StigmaBusters gives us the update:

• One company (which asked to remain anonymous) has pulled three months worth of commercials from Crumbs' time slot.
• USA Canon called to let NAMI know that ABC-TV last week placed their commercial during Crumbs without their knowledge. It was not their choice; the show does not represent their perspective on mental illness and people with disabilities; they will not advertise on the show. Their dialogue with us was cordial and sincere. If anyone is looking to buy a camera, be nice back and check out their models.
• Rice-a-Roni will no longer advertise on the show—although one commercial that's under contract may still pop up.
• Chevrolet is having General Motors consider StigmaBusters' concerns.

The bad news? The show's second episode drew twice as many viewers as The O.C.

Look, I also think Fred Savage is endearing (oh, how I loved The Wonder Years), but it wouldn't be that tough for the show's writers to quit penning offensive stuff.

It makes a big difference if you call or write or email advertisers and complain. Contact info, etc., after the jump.

The premiere episode of Crumbs drew an audience of 12 million people. By comparison, in the same time slot: CSI drew 19 million; The Office 10 million; and The O.C. 6 million. Next week's Nielsen ratings will give a better picture of whether or not the show has staying power.

Although not as bad as the premiere, the second episode (January 19) was still offensive in its frequent references to Mother Crumb's stay in a "mental hospital."

Sample lines include:
• "He's my mom's attendant friend from the psychiatric hospital."
• "I can't believe you slept with an attendant from a mental hospital."
• "You can't adopt a baby. Did you mention that you just got out of a mental hospital?"
• "If (she) gets out, who stays in?" the attendant claims other people in the hospital are saying, when asked if they remember her.
• "Should we call her shrink or is there something here we can plug in to zap her with?" her son asks, apparently alluding to electroconvulsive therapy.
• One of her sons programmed her cell phone to play the song "Crazy Train" as its ring tone.

**Keep Speaking Out!**
Please contact ABC-TV again and this week's commercial sponsors to protest the show's stigmatization and trivialization of mental illness. Suggested points to make:
• On Thursday, January 19, your company ran a commercial during ABC-TV's broadcast of Crumbs (9:30 PM ET), a show that stereotypes, trivializes, and makes fun of mental illness.
• Please consider withdrawing as a sponsor of the show. Does Crumbs represent your company's perspective on mental illness and your policies toward people with disabilities.
• What are you going to do to support the federal government's National Anti-Stigma Campaign? Donate paid primetime airtime for PSAs. Sponsor NAMI walkathons. Educate your employees about mental illness and the need to eliminate stigma. Make up for the damage you have caused.

Anne M. Sweeney
Co-Chair, Disney Media Networks
President, Disney-ABC Television Group
500 S. Buena Vista Street
Burbank, CA 91521

Steve McPherson
President, ABC Primetime Entertainment
500 S. Buena Vista Street
Burbank, CA 91521

We apologize for the incorrect ABC-TV email address included in last week's alert. The network has changed to a new system for audience comments. Please go instead to its new address. http://abc.go.com/site/contactus.html

**This Week's Targets**
Timothy J. Barberich
Chairman of the Board & CEO--Sepracor (Lunesta sleep medication)
84 Waterford Drive
Marlborough, MA 01725
Phone: 1-800/LUNESTA (586-3782)
info@sepracor.com
Lunesta is the only product that was advertised on both the premiere and second episode. Its sponsorship is especially offensive since as a sleep medication for "restless minds" its potential market includes mental health consumers. Don't let them get away with it./

Citigroup (Citi Simplicty credit card)
399 Park Avenue
New York, NY 10043
Phone: 1-800/285-3000
Email: Use the online form
http://www.citi.com/domain/contact/?BVE=https://web.da-us.citibank.com&BVP=/cgi-bin/citifi/scripts/&M=S&US&_u=visitor&_profile=NNNNNNNNNNNNNNNNNNNNNNNNNNN

Thomas J. Falk
Chairman of the Board & CEO--Kimberly-Clark Corporation (Kleenex anti-virus tissues)
P.O. Box 2020
Neenah, WI 54957-2020
Phone: 1-888/525-8388 (Monday - Friday, 8:00 am - 4:00 pm CST)
Email: Use the online form
https://www.kimberly-clark.com/ask/united_states.asp?country=US&Label=CorporateSite&ssl=true

Gillette (Duracell batteries)
Prudential Tower
Boston, MA 02199-8004
Phone: 1-800/551-2355 (9:00 am to 5:00 pm EST)
Fax: 1-800/796-456
Email: Use the online form
http://gillette.custhelp.com/cgi-bin/gillette.cfg/php/enduser/ask.php?p_sid=SiCy16-h&p_lva=&p_sp=cF9ncmlkc29ydD0mcF9yb3dfY250PTI0MiZwX3BhZ2U9MQ**&p_li=

Johnson &Johnson Consumer Products Company (Johnson's baby oil)
Attn: Information Center
199 Grandview Road
Skillman, NJ 08558-9418
Phone: 1-866/565-2229
Email: www.johnsonsbaby.com/contactus
Dr. H. Fisk Johnson
Chairman & CEO--S. C. Johnson & Son, Inc. (Ziploc double zipper bag)
1525 Howe Street
Racine, WI 53403-5011
Phone: 1-800/494-4855
Email: www.scjbrands.com/contact (Select ziplock at the arrow)

William Clay Ford, Jr.
Chairman & CEO--Ford Motor Company (Ford Fusion)
Customer Relationship Center
P.O.Box 6248
Dearborn, MI 48126
Phone: 1-800/392-3673(FORD)(Monday - Friday 8:00 am – 5:00 pm CST)
Email: Use the online form
https://secure.ford.com/en/support/emailUs.htm

Roger K. Deromedi
CEO--Kraft Foods, Inc. (Mayonnaise)
1 Kraft Court
Glenview, IL 60025
Phone: 1-800/323-0768
Email: Use the online form
http://www.kraftfoods.com/main.aspx?m=contact_us/cu_form1

Chris Hill
Board Communications Designee--Sprint Wireless
2001 Edmund Halley Drive
Mailstop: A5-6
Reston, VA 20191
Phone: 703/433-4000
Email: boardinquiries@sprint.com
or www.sprint.com/contact

Fredrik Arp
President & CEO--Volvo Cars of North America, LLC
7 Volvo Drive
Rockleigh, NJ 07647
Phone: 1-800/458-1552 (Monday - Friday, 8:30 AM to 7:00 PM EST)
Email:customercare@volvocars.com

Headlines: international

•New Zealand: Mental health project targets Chinese
•Africa: Zambian government to prioritise mental health
•Ireland: Overhaul of mental health services recommended
•Ireland: Single People Face Higher Risk of Mental Illness
•Australia: Mental health scheme helps better use police resources
•Australia: States' cooperation needed to fix mental health, says PM

It's not your imagination!

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Today really does suck:

Jan. 24 called worst day of year. [MSNBC]

(Thanks to D-Mac for the tip.)

On the plus side psychologists now believe animals—even insects—have personalities. Of course, if you've ever owned a cat, you know that already.

Photo courtesy Chuckumentary via Flickr.

Also

Check out the Medicare Part D Monitoring Project, especially if you've experienced the trauma first-hand. Excerpts from people who've submitted their stories:

“I enrolled on the morning of December 23. I have yet to get a member identification number. My Part D plan, Medicare and the pharmacy show no evidence of my enrollment. I have been on the phone with my Part D plan a total of five hours one day and two hours the next. My plan told me that they’re‛backed up.’"

“I have a client who is disabled and has both Medicare and Medicaid. She was auto-enrolled in a Part D plan, but that plan did not cover all of her prescriptions. She then enrolled in another plan that did cover her prescriptions. ... In January she went to pharmacy three times and was denied her prescriptions. She was given the choice of paying for medicines (remember this person is so poor she’s on Medicaid) at the retail price or leaving without medication. She left without her medicine.”

Submit your story here.

Medisucks Part D update: report from the front lines

Sent to me by a consumer advocate in PA. Emphasis mine, because I love the phrasing:

Your Weekly Medicare Consumer Advocacy Update

When confronted with the disastrous first weeks of the new drug benefit for people with Medicare, Bush administration officials tout the “more than a million” prescriptions filled every day. But officials say that they are unable to give reporters a figure on the number of prescriptions denied, the number of times a poor person who last month relied on Medicaid drug coverage had to walk out of the pharmacy without vital medicine.

Mark McClellan, the administrator of the Centers for Medicare & Medicaid Services (CMS), admits that “several hundred thousand” people with both Medicare and Medicaid are not recognized by their Part D drug plan as eligible for the Extra Help program, and are charged unaffordable co-payments or even a $250 deductible.

How many, Dr. McClellan, is “several hundred thousand” exactly? (Hint: It’s likely more than 200,000, the first estimate that was floated.) This McClellan brother owes the nation straight answers, not the spin that is the province of his brother Scott in the White House Press Office.

That’s only one of the many unanswered questions about the health crisis created by putting Medicare drug coverage in the hands of for-profit insurers. Which drug plans failed to fill prescriptions for noncovered drugs as they promised in their transition policies? What drugs were denied and for how many people?

These are necessary questions to ask if the Bush administration intends to enforce its rules and penalize―in a meaningful way―plans that break them.

The long and often fruitless waits at pharmacy counters this month are largely due to the inability of the plans’ helplines to handle the volume of calls from pharmacists and plan members. In their bids to CMS, how much funding do drug plans allocate for marketing, and how much are they spending on services that can actually help people get their drugs?

While we’re at it, what are the profit margins for the drug plans? What percentage of the rebates, if any, that Part D plans receive from drug manufacturers is passed on to people with Medicare in the form of lower drug prices or lower premiums? What is the real price drug plans are paying for these drugs, and how does it compare to the prices set for the Medicaid program or the Canadian government? We deserve answers.

President Bush needs to take responsibility for the fiasco caused by his zeal to privatize Medicare. The first step is publicly acknowledging the real extent of the problem. The next step is to deliver a true accounting of the cost of handing Medicare drug coverage over to private plans.

WWFD? (What Would Freud Denote?)

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A reader posted a comment yesterday about different dream symbols, especially those dealing with water. The news isn't good. I've heard dreaming about your teeth falling out is also highly symbolic. Remember that Sopranos episode in which Tony has a weird dream, and you can't tell what's real and what's his interior life? That was brilliant.

Last night I dreamt my ex-husband, Paul, and I were in the Bronx. He lived there in a tiny apartment. He took me with him to his favorite store, where they sold swords and spears (that reference speaks for itself, unfortunately), among other things. I was browsing through the women's clothing section, and though it was supposed to be a thrift store, the dresses ranged from $950 to $1,150 each. The one I liked was acid-wash denim with embroidered flowers and a puffy skirt. It was Marc Jacobs couture or something, which made me think it might be pretty. Then I thought, "Acid wash? For $950? I don't think so."

Paul and I left the store. He was holding a smooth wood sword/spear. I asked if I could hold it. When we were a couple blocks away from the store, I heard shouts from the store owner: "Come back!" I jokingly swooshed the sword in the air as though I were in Crouching Tiger, Hidden Dragon. The store owner went back inside, afraid of my prowess.

The reason they were chasing us? Paul had paid them $200 for the sword, even though it was priced at $700. They hadn't noticed the mistake, and now they were angry. The rest of the dream was spent trying to hone my martial arts skills so I could fight them if they came after us.

Incidentally, Paul and I are still very close. But, well, not sword/spear close, if you know what I mean.

January 23, 2006

Song of the day: "I Believe in the Good of Life"

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I'm feeling a little tired and headache-y today, perhaps because yesterday I damaged myself by doing yoga. It's not like I was in a class, and they were too demanding. I was just doing it by myself. CVS heat wraps have been unhelpful.

But you know, gosh, I believe in the good of life—and the redemptive power of an upbeat tune. The song is the Hidden Cameras' popular single from a couple years ago. I'm not that into the band (pictured) but I do like this song, and I confess it improves my mood. It makes me think of the Monkees, always a good direction for my brain to go in.

(By the way, that link for the Monkees reference? It's the Brazilian fan site, so click it. The pink hearts are very moving.)

Lindsay Lohan

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The last time I wrote about Lindsay Lohan, I spelled her name wrong. Oops. Looks like she spelled her health problems wrong. Vanity Fair called her B-U-L-I-M-I-C, but she says she's just a P-E-R-F-E-C-T-I-O-N-I-S-T. "My words were misused and misconstrued and I'm appalled," Lohan told Us Weekly. Unfortunately for her, Vanity Fair has the interviews on tape.

Whenever a celebrity admits to an illness, it brings attention to said illness, which brings credibility and money. I mean, look at Bob Dole and erectile dysfunction! Seriously, though: Why won't Lindsay tell the truth? If she was committed to making the world a better place (as most people who star in movies like Herbie: Fully Loaded are), she'd try to help young girls troubled by weight issues.


A talk with Judith Asner, MSW, a bulimia treatment specialist
[serious response to a serious problem]
FeedLindsay.com [really dumb]

Oh no you didn't!

First Vermont. Then Australia (which I confused with Canada, which is embarrassing). Now Washington, D.C.? Total bullshit.

Residents Protest Location of Mental Health Facility [WTOP News]

Well, sign me up

brain.gif
Researchers are again looking into the possibility of using MRI technology to try and "see" bipolar disorder, an effort that's failed in the past. That failure has been a source of frustration in the medical community, and in consumer culture as well. If it's not a serious brain disorder, some people think, then what is it?

So-called healthy people often say things like, "Well, everyone gets depressed sometimes," or "we're all a little crazy, right?" Well, no, not in quite this way. There needs to be a distinction between serious brain disorders and a bad mood. The rhetoric of "just pull yourself together" is destructive.

Evidence of the illness on an MRI will engender "respect" for the illness in the mainstream, encouraging people to put aside their shame and self-loathing, and get help.

In other words, sufferers will feel free to punch someone who tells them to just buck up and get over it. Or, less violently, whip out a printout of the MRI.

Personally, I can't deal with the MRI machine. It took about 10 Valium to get me through it the last time. Until they doped me up, I was scrambling out of there, screaming and crying like a little girl whose toy has been taken away. Waaaaaa! Like that. Very mature.

Finding Bipolar Disorder with MRI [Technology Review]

Headlines: national

Chase suspect has history of mental illness, his attorney says [Houston Chronicle]
Recent case exposes cracks in fractured mental health system [Minnesota Public Radio]
Bipolar disorder focus of Texas retreat [TheFacts.com]
County unit not trained to handle mentally ill [Houston Chronicle]
County seeks mental health funds: Prop. 63 money would help El Dorado expand its services. [Sacramento Bee]

Back to dreamland

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Sometimes I have two or three separate dream-lives in one night, because after I wake up to scarf down some sugar-free coconut snacks and swig some iced tea, I restart the dream engine when I fall asleep again.

Last night the first dream had something to do with Philadelphia's beloved Southeastern Pennsylvania Transportation Authority, aka SEPTA, which does a terrible job of transporting locals from one stop to the next. Each day I take the trolley to work, which sounds quaint, and even felt quaint the first few times, but is now simply frustrating.

In the dream I was waiting for the trolley, and I ran to the stop only to see it pulling away—into a murky pond. I waved my arms, and shouted. The female driver looked at me with disda